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ABC UK Patient Programme Officer (Part time, home based)
ABC UK are looking for a dynamic, self-starter to work with us on our ambitious bladder cancer patient support programme.
Bladder cancer is not a rare cancer - but it does have a low profile, lack of awareness, low research investment and desperately needs new treatments. Over 10,500 people are diagnosed each year in the UK, half of those will die. There is a lack of information and support for patients. Help Action Bladder Cancer UK to change this.
You will be helping us to set up and sustain bladder cancer patient support groups, liaise with hospitals, maintain contacts, strengthen our regional networks and help create our patient information materials (and make sure they reach the right people). You'll need to be flexible, enthusiastic, with a friendly and efficient personality and happy to work for a small, and growing, charity.
Interviews are likely to take place in Central London. Only candidates shortlisted for interview will be notified. No agencies.
Full details and how to apply are below. Please ensure you read the full job description and the two background documents for full details of the role and some more information ABC UK and our work.
ABC UK Improving Outcomes for Patients Programme
The ABC UK IOP programme is asmall grants scheme, launched in November 2016, and is the only grants programmein the UK aimed at encouraging work to directly improve outcomes for those with bladder cancer and patient experience. The programme is designed to focus on small, innovative projects that can demonstrate clear outcomes and improve knowledge, enable change and have a direct impact on patient experience. There is little research investment in bladder cancer or improving outcomes for those with bladder cancer or their experience as a patient - and our aim with this programme is to actively encourage work which will have an impact and also act as a catalyst to encourage other projects.
The grants programme is open to a wide range of applicants - nurses, those in primary care, cancer specialists and researchers. Our view of what constitutes an eligible project is deliberately broad - for example, projects might be aimed at improving patient experience in a practical setting, improving early diagnosis in primary care, focus on improving or developing treatments, be a data led piece of research or a lab-based project. The first 2017 grants round had a highly encouraging response from applicants and we were impressed by the range and potential impact of the projects put forward. You can see more information on the 2017 grant projects below.
ABC UK Improving Outcomes for Patients Programme 2018
The 2018 grants round is now open.
Details on how to apply and guidelines are below. The Programme opens for applications on 30 November 2017 and deadline for completed applications is 28 February 2018. For this round we are also offering an opportunity to submit an expression of interest and to discuss your idea with a mentor - this support is available from 01 November 2017 until the application closing date.
ABC UK Improving Outcomes for Patients Programme 2017
This first round of our new grants programme was very successful and we were delighted with the range and quality of the applications. We awarded three grants in 2017 as summarised below - these projects will complete in 2018:
Project: Understanding the Barriers in the Cystectomy Pathway and Improving Patient Experience
Shieny Abraham, Urology Cancer Nurse Specialist, Whipps CrossHospital
Thisproject aims to improve patient experience during their cancer journey from GP referral to cystectomy. By conducting an audit and focus groups across the four hospitals to help us to understand the patient journey and identify real experiences. This project will also help us identify and understand some of the barriers both clinicians and patients face, to enable us to rectify or defer our practice by including service initiatives such as redesigning the pathway for invasive bladder cancer and fast track patients to prevent any delays in their cystectomies and treatment, and to help improve patient experience and patient outcomes and ensuring our service is patient centred.
Project: Identification Of New Adjunctive Treatments For Bladder Cancer
Dr Farhat Khanim, University of Birmingham, School of Biosciences
This project aims to identify and develop new treatments that can be used in combination with currently used drugs for the treatment of the early stages of bladder cancer (non-muscle-invasive bladder cancer, NMIBC). Our work in the laboratory has already identified a number of promising treatments that we are developing towards early clinical trials. We are very grateful to ABCUK as this Improving Outcomes for PatientsProgramme funding will allow us to test a much larger number of possible new treatments, and will increase the chances of us progressing several new treatments towards clinical use.
Project: Assessing Patient Experience in Bladder Cancer
Snehadhar Shah, Leicester MedicalSchool, University of Leicester
The NHS periodically produces a cancer experience survey which is based on the responses of patients who have been treated. A high level report is published from this which compares cancer site, geographical area, ethnicity, gender, tumour site and deprivation. However, the summary reports say little about each tumour site. Bladder cancer, in particular, has a widely variable prognosis based on tumour stage, hence treatments are also widely variable due to this. There has been no attempt to correlate patient experience with treatment type. It is unlikely that this would be possible anywhere else in the world. This project will offer specific insight into patient experience for patients treated with transurethral resection alone, systemic chemotherapy, radiotherapy and radicalsurgery.