This page is updated regularly as further information becomes available
As the current situation is changing on a daily basis, we shall be using this page to post useful links and information about COVID-19 which we hope might be helpful for those with bladder cancer.
If you have bladder cancer, you may be worried about how COVID-19 will affect you. You should follow the advice of your bladder cancer healthcare team, and contact them if you have concerns.
Those with cancer may be at a higher risk of infection, so please follow the advice to help reduce the risk of getting coronavirus.
COVID-19 VACCINE AND BCG TREATMENT FOR BLADDER CANCER
Action Bladder Cancer UK has sought guidance on the usage of the COVID-19 vaccine for bladder cancer patients who are either waiting to start a course of BCG treatment, have just finished a course of BCG, or are currently part-way through a course of BCG.
Whilst there is, as yet, no clinical evidence on which to base formal guidance (given the swift development of the COVID-19 vaccines), our consultations with leading clinicians in the UK have resulted in the following suggested guidance based on clinical practice with the usage of vaccines with BCG treatment, which we feel is a practical response . Our suggested guidance:
- It is advisable for a 2 week wait following the COVID-19 vaccine before starting BCG treatment.
- It is advisable for a 2 week wait following BCG treatment before you have the COVID-19 vaccine.
- It is advisable for patients on a 6 week course of BCG to wait for 2 weeks after finishing the whole course before they have the COVID-19 vaccine
- If symptoms from your last BCG treatment persist beyond 2 weeks, it is advisable to avoid having the COVID-19 vaccine until these symptoms have settled.
- Although prolonged symptoms from the COVID-19 vaccine are rare, it is advisable to delay the start of BCG until any such symptoms have settled.
As always, ABC UK would suggest you always check with your own medical team if you have any further questions.
DIRECT PATIENT SUPPORT
ABC UK continues to provide direct patient support by telephone or email.
Telephone: 0300 302 0085
ABC UK COVID-19 PATIENT SURVEY
We are now running the 2nd of our ABC UK surveys to monitor how the pandemic continues to affect bladder cancer patients. This will help us learn what the longer-term implications may be, to ensure ABC UK provides the right support and information for patients and inform how we can best support the NHS, and others, to provide safe services for people with bladder cancer.
If you are a bladder cancer patient, over 18, and resident in the UK, you are eligible to take this anonymous survey here: https://www.surveymonkey.co.uk/r/8MCYWZG
Please contact us on 0300 302 0085 or firstname.lastname@example.org if you would like more information on this survey. Thank you for helping us with this important work.
Well-Being - ABC UK's Information sheet:WELL BEING Bladder Cancer and Covid-19.pdf
Finance and Covid-19 - ABC UK's Information sheet on money concerns: ABC UK Finance and Covid-19.pdf
USEFUL LINKS TO FURTHER INFORMATION
NHS Information on Coronavirus - www.nhs.uk/conditions/coronavirus-covid-19/
NHS 11 online - if you are showing symptoms of Coronavirus: https://111.nhs.uk/covid-19/
CANCER RESEARCH UK - useful information for cancer patients and Covid-19:
Information from BAUS (British Association of Urological Surgeons) for bladder cancer patients: www.baus.org.uk/patients/covid19_patient_information.aspx
Government Information - What you need to do: https://www.gov.uk/coronavirus
Government guidance on shielding and protecting vulnerable persons from Covid-19: https://www.gov.uk/government/publications/guidance-on-shielding-and-protecting-extremely-vulnerable-persons-from-covid-19/guidance-on-shielding-and-protecting-extremely-vulnerable-persons-from-covid-19
Government guidance on social distancing: https://www.gov.uk/government/publications/covid-19-guidance-on-social-distancing-and-for-vulnerable-people/guidance-on-social-distancing-for-everyone-in-the-uk-and-protecting-older-people-and-vulnerable-adults
BLADDER CANCER INFORMATION
There is a lot of information about bladder cancer on our website and we also have a range of leaflets and information sheets. All of these are available online on our Resources page www.actionbladdercanceruk.org/resources/ or we can post you printed copies.
PATIENT SUPPORT GROUPS HAVE NOW CANCELLED FORTHCOMING MEETINGS DUE TO CURRENT CONCERNS ABOUT CORONAVIRUS.
It is important to consider the vulnerability of those with bladder cancer and follow advice to socially distance or self-isolate.
Support groups have now cancelled forthcoming meetings. However, please contact the support group directly if you want to find out more - contact details are on the list of groups on our support group page: www.actionbladdercanceruk.org/find-a-support-group/ Some of the groups are still providing support by phone or email. If you are from a support group and want to let us know how you are continuing to support your group members, do let us know and we can help let people know.
A group of cancer charities have issued this information sheet about cancer patients and coronavirus (this is not specific to bladder cancer patients but you may find some useful frequently asked questions):