Patient Stories & Blog

We know that many people find reading the story of other patients very helpful when trying to make sense of their diagnosis or cancer journey. We also know that these stories can be very powerful in helping to raise awareness of bladder cancer and highlight the urgent need for new treatments, research and support for those with bladdercancer.If you would like to tell your story please do get in touch with us by email at group@actionbladdercanceruk.org  

We can arrange for Sara Jane, our Patient Programme Officer, to get in touch to help you tell your story if that would be helpful, and we also have a 'hints and tips' sheet to give you more ideas about what to write.

You can also tell us your story using this contact form [blog link -all blogs to be cleared/edited by ABC UK before posting]

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Allen's Story
Allen was diagnosed stage 2 Non-Muscle Invasive Bladder Cancer in 2009.

Phil's Story
Phil was diagnosed with stage 3 bladder cancer in 2010.

Russell's Story
Following diagnosis of bladder cancer in 2011, Russell had a Neo bladder (Reconstruction of bladder) operation.

Tony's Story
Following diagnosis of bladder cancer in 2000, Tony had chemotherapy and surgery, including a stoma.

Chris's Story
Following diagnosis of grade three bladder cancer in 2010, Chris had surgery and intravesical therapy with BCG.

Deb's Story
Deb was diagnosed with G2 pTa bladder cancer in 2012, and subsequently Carcinoma in Situ (CIS).

Don's Story
Don had a neo-bladder at the age of 65.

Neil's Story
Neil writes his story 10 years after his diagnosis - some highs and lows along the way, but he's had 18 months of benign biopsy results.

Dino's Story
Dino was diagnosed with bladder cancer just before his 41st birthday, however he experienced problems since he was a teenager. Dino had a Neo bladder in February 2012 and was given the all clear in December 2012.

Dick's Story
Dick first noticed symptoms in August 2011, needing to pee frequently and a stinging sensation. Further tests showed he had G2 (High Grade) pTI TCC. Dick had his bladder removed and a stoma fitted in December 2013. He is now clear of cancer and is recovering well.

David's Story
David was diagnosed with bladder cancer in 2001.  In February 2012 he had a radical cystoprostatectomy with extensive lymphectomies (28 nodes) and construction of an ilial loop diversion.  In early 2014 he completed a 20 treatment course of radiotherapy on a metastatic pelvic lymph node.

Dave's Story
The casual remark to his GP that was to change Dave's life forever. While visiting his GP in 2008 for a routine blood pressure check up, as he was leaving, Dave casually mentioned he'd had blood in his urine that he suspected was from a kidney stone problem he'd had previously.

John's Story
John wrote this online blog about his personal experience of bladder cancer.

http://www.johnmcquaid.co.uk/2013/04/tale-of-tumour.html

He also found an article in the BMJ in 1892 about the removal of bladder tumours over 120 years ago - if you aren't squeamish, read more!

http://www.johnmcquaid.co.uk/2013/09/soft-pedunculated-growth.html

 

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Help prioritise top UK research questions for bladder cancer - PHASE 2 06/09/2018

Thank you to everyone who took part in the first part of the survey to identify the top 10 research priorities for bladder cancer. Bladder cancer is seriously underfunded and ABC UK is delighted to be working with one of the top research teams in the UK to identify what patients and he...

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