Patient Events

Research updates: Monday 7 September, 6–7.30pm

Our first session, Monday 11 April, focused on understanding staging and grading – what these terms mean and how they affect treatment decisions, led by Paula Allchorne – Urology Lead Nurse at Barts NHS Trust.

Participants had the opportunity to join one of three smaller support sessions, where they were able to speak more openly with others facing similar experiences:

• BCG treatment – for those undergoing or considering BCG therapy
• Living with a urostomy – sharing practical advice and experiences
• Newly diagnosed – a supportive space to share your experience 

We always aim to provide a safe environment where people can ask questions, gain reliable information and connect with others who understand. 

The groups are held online, making it easy to join from home, whether the participant wants to listen, ask questions, or share experience.

A talk about the emotional and psychological impact of having a diagnosis of bladder cancer, looking at living positively with cancer and giving practical strategies for managing worries and concerns. This session focused on how to optimising emotional wellbeing.

Please see the link to the webinar, here.

For people who have undergone a cystectomy in the last two years and are living with a urostomy.

The session was led by the ABC UK Patient Support team together with a stoma nurse, and also a male and a female bladder cancer patient (who are both living with a urostomy).