Adjusting to life with and beyond bladder cancer can sometimes be difficult.  It can be something of an emotional rollercoaster, and there can also be some purely practical issues that you could do with some help in handling. 

 ABC UK have a range of materials for those living with bladder cancer.  New information materials are regularly being added on different topics.  All of these resources can be downloaded and printed off from the links below or, if you would prefer to have printed copies, just get in touch with us on info@actionbladdercanceruk.org or call us on 0300 302 0085

You can also order any of our materials by using the online order form

1   CYSECTOMY AND BLADDER SUBSTITUTES.pdf

2  LIVING WITH A UROSTOMY MAR 2019.pdf

3  LIFE WITH A NEOBLADDER MAR 2019.pdf

4    TIREDNESS AND FATIGUE.pdf 

5   EXERCISE.pdf

6   HEALTHY EATING.pdf

7  STOPPING SMOKING.pdf   

8   TRAVEL.pdf

9   TRAVEL WITH A STOMA.pdf

10   MONEY MATTERS AND WORK.pdf  

 

Other organisations which can provide information and support 

The list below provides links to some other organisations that might be a useful source of advice and information.

FOR PATIENTS

Anti-Coagulation Europe

National charity working to prevent thrombosis including cancer-associated thrombosis; including the provision of information, education and raising awareness.  >> Visit the website

Bladder andBowel Foundation

National charity for people with bowel and bladder concerns  » Visit the website  

Bladder and Bowel Community - Just Can't Wait Card 

You can order a free toilet access card online - assists with access to your closest toilet, helps explain and avoid a potentially embarrassing situation quickly www.bladderandbowel.org/help-information/just-cant-wait-card/

Bladder Cancer Advocacy Network (BCAN)

USAbased information and support website >>Visitthe website

CancerAdvice » Visit the website

Cancer Counselling Trust
The CCT has now closed, however there is information and archived articles on their website » Visit the website

Cancer Help UK
Information for patients about cancer and cancer care from Cancer Research UK » Visit the website

CISS - Cancer Information & Support Services

Charity focused on cancer support in SW Wales  >>Visit the website

Cancer Research UK

 Information about cancer, statistics and details of current clinical trials  » Visitthe website

Cancer Support Scotland   >>Visit the website

Fight Bladder Cancer
Fight Bladder Cancer a charity for people with bladder cancer to provide support and non-medical advice to each other. They also have a confidential chat forum on Facebook https://www.facebook.com/groups/bladdercanceruk 

 Institute of Cancer Research

 Cancer research institute, the ICR is also a higher education institution and a college of the University of London » Visit the website

 Macmillan Cancer Support

 National charity supporting cancer patients and their families.  Helpline:0808 808 0000  >>Visitthe website

 Macmillan - practical tips

 Useful advice on issues such as finances, benefits, insurance and travel  >>Visit the website

 Macmillan inScotland  >>Visitthe website

 Marie Curie Cancer Centre

 National charity providing care for patients in the community and in hospices  » Visit the website

 Mitrofanoff Support  Home | Mitrofanoff Support

 My CancerTreatment

 Guide to NHS cancer services across England  >>Visitthe website

 NHS Choices

 NHS patient website  » Visit the website

 NHS Choices- Living with Cancer

 This section of the NHS Choices website provides links to various resources and sources of advice on specific issues such as life after   your cancer diagnosis, and where to find support with social care  >>Visit the website

NHS Friends & Families Test

A quick and anonymous way to give your views after receiving care or treatment across NHS services, to help providers and commissioners understand whether patients are happy with the service provided, or where improvements are needed. >>Visit the Website

 Patient UK

 Independent patient information website   » Visitthe website

 Prostate Cancer UK

 Information,one to one support and helpline for those with prostate cancer.  Helpline 0800 074 8383  >>Visit the website

 Tackle Prostate Cancer

 Information and support on prostate cancer  >>Visit the website

 Urostomy Association

 Offer support, reassurance and practical information to anyone who may be about to undergo, or who has already had surgery resulting in a urostomy, continent urinary pouch or a neo-bladder  » Visit the website

 

FOR HEALTHCARE PROFESSIONALS

 British Association of Urological Nurses (BAUN)  >>Visit the website

 British Association of Urological Surgeons (BAUS)  » Visitthe website

 European Oncology Nursing Society (EONS)

 British Uro-oncology Group (BUG)  » Visit the website

Primary Care Urology Society  (PCUS) www.primarycareurologysociety.org